Tuesday, December 8, 2009

Are age requirements killing us?


Are all of the guidelines and restrictions when it comes to what age we should be screened for a particular disease really in our best interest? Yes, I believe everything should come with parameters, but to what expense? Do health officials know when to ignore the guidelines as much as they know when to follow them?

I just read about David Cohen the 40 year old veteran who is suing the VA Hospital because they denied his request for a colonoscopy. A request that was made because he has a family history of colon cancer, including his grandmother who died from the disease and other family members who have exhibited symptoms. He has proof that just last year he was denied just a few minutes after his request was made. How is a few minutes enough time to make a sound decision on something as important as a screening test that could possibly save your life?

So now Mr. Cohen is in for the fight of his life. He was diagnosed with stage 4 Colon Cancer and was given 26 months to live. From what I've seen and read about him, I believe he has the will to beat what he's been told, but is this something that could have been prevented? Sure, he may have gotten cancer no matter what, but to what degree? With early detection, we're talking about stage 1 or 2, when the chances of survival are far greater.

We need health-care reform in the worst way and on so many levels. A CNN anchor asked Mr. Cohen today why he didn't turn away from the VA when they repeatedly turned him down and just pay for the test himself. He, like so many other American's couldn't afford it and I suspect in some way he probably believed just a little bit that the people who turned him down and denied his request knew what they were talking about. Navigating the system is challenging at best when you have insurance and doctor's on your side, what happens when you don't.

Sunday, December 6, 2009

Just enjoy the ride...


My cup runneth over with random thoughts and emotions. So much so I don't know where to start.

Yesterday was the Ovarian Cancer Of Florida's annual Holiday Party...a small group of the finest people I know. I am so inspired by the women I walk beside and truly grateful that I am along for the journey. Whenever I am around them, I am reminded of my purpose. I am here and still alive because I have a message. A message to young women all of over the world. A message to minority women. A voice for those who are undeserved and often left behind or left for dead. So much has transpired over the last few years and sometimes I just want to sit and be still. If I make no moves, there's a good chance I can avoid all disappointments.

I was talking to my mom the other day and she told me an interesting story about my dad. My dad just finished treatment for Prostate Cancer and it seems his passion for giving has quadrupled. She ran across quite a few envelopes with donations in them...all ready to be mailed to various organizations and people in need. The surprising part for my mom was the number of envelopes he had ready to go. They like most of us have their list of go-to charity's, but it seems that this years list had exploded. As I listened, I realized that my dad's eagerness to take care of the world is a side effect from being a survivor. I equate it to being so thankful and grateful that you are here, you want to do whatever you can to help others. As survivor of anything you realize up close and personal what the alternative to surviving is and for a lot of people that thought remains a figment of their imagination for a really long time. It's something you wish you could bottle up and distribute to the world in a lovely glass bottle, a feeling you wish people could experience and execute without having to go through a life threatening illness.

Another side effect for me is that not only do i want to help the world, I want to do everything now..like if I don't I will run out of time. I want to fast forward to a successful business, fantastic trips and voyages with Dan, family, & friends. Advocacy work that MAKES a difference in the lives of women all over the world. And last but never least, maybe just maybe a family of our own, be it conventional or unconventional, I know that we can make a difference in the life of a child.

I'm praying that God gives me the strength and courage to tackle all that I want to achieve and even if I stay a bit along the way, I will remember to enjoy the ride!!

Wishing you all many blessings this holiday season!!!

Tuesday, November 17, 2009

Mammogram or Bust!!


"Women in their 40s should not get routine mammograms for early detection of breast cancer, according to updated guidelines set forth by the U.S. Preventive Services Task Force."

So the "experts" have spoken...again. Up until now mammograms were routine for women 40 and over. Now a task force that consist of not one oncologist has changed the advisory and has recommended that women between 40 and 49 should consult with their individual doctor to see if it's in their best interest to have a mammogram. They say routine mammograms in younger women are responsible for early detection breast cancer in about 15% women in this age group. In my opinion(and I'm no expert) this means that without that early screening method, there's a chance that a good number of those same women would go undiagnosed until it was probably too late.

So now it's up to your doctor and unfortunately insurance companies to give the final yes. I am forever thankful that my original gyn did not DISMISS me because of my age. Statistically, Ovarian Cancer is a 55-60 year old Caucasian woman's disease. (I'm gearing up on for another blog post, where I will tackle that statistic head on.) And unlike breast cancer, there is no screening tool to detect Ovarian Cancer. It's up to you to educate your doctor and push him to dig deeper if you feel like something is wrong. I guess the same now goes for women 40-49 when it comes to breast cancer and BTW-they're not so sure self-exams are a good way to spend your time either...who are these people and how can we get them to collectively agree to stop talking and leave well enough alone?

When will we get it? We can save millions of dollars on treatment if we had more preventative measures in place. Stop trying to cut corners!! No matter what your political affiliation, you have to agree that without adequate health-care we are ALL at risk!

Saturday, November 14, 2009

Three Birthdays beyond diagnosis...


Birthday's take on a whole new meaning when you experience something as devastating as a cancer diagnosis. I remember being so excited to reach 10, because that meant I was now in the double digit club. 13 meant that I was OFFICIALLY a Teenager. 16, well we all know that every girl dreams about their "sweet 16", although I didn't have a party, I still felt that along with 16 came some rite of passage. After-all, on all of the shows I grew up watching, from The Brady Bunch to The Cosby Show--16 was a milestone, it was the age you could date, get your ears pierced, wear make-up...you know those things that scream "I'm a woman now"....18 gave me the right to vote, 21 the right to have the drink of my choice, 25 meant I was half way to the big 3-0, and 30...well after that I kind of stopped counting.


My 36th birthday was on Thursday and I'm back to counting. Instead of counting towards the big 4-0, I'm counting away from the big C. I was diagnosed at the age of 33 with Ovarian Cancer, six weeks before my 34th Birthday. So this is officially my 3rd birthday after diagnosis. Never in a million years would I have guessed that this would be my life at 36. The best thing about life at 36 is that I'm aware and more thankful and grateful for every day I have here on earth. For the people who surround me and love me for who I am. Sometimes I sit and watch people who supposedly have it all. The husband, house, kids, dream job & car. I watch in amazement as these same people still find something to complain about. How is that possible?

Earlier today I caught a little bit of "Extreme Home Makeover"...you know the one that no matter how hard you try, you can't watch with out shedding enough tears to remove a drought. A little girl had been writing the show forever, begging for help for her family of 7 who were forced to leave their home and live in a hotel room because of toxins that were found in their home. She prayed and she prayed, and at times she wanted to give up. She told her mom that part of her felt that God just didn't care about them.

I understand her , probably more than someone who hasn't experienced a loss or traumatic event. Every year that I'm blessed with another birthday I'm reminded that no matter what, we have to stay faithful and positive. We have to stay committed to our journey and the road we are traveling. No it's not easy, but what is? I still have my moments of despair, but that's okay. I may not have everything I want in life, but I have everything I need.

So here's to another birthday and to being open and receptive to the blessings that are bestowed upon me everyday.